News Summary
Multiple myeloma, a serious blood cancer, disproportionately affects Black Americans. Advocacy efforts, such as community initiatives and clinical trial participation, are crucial in addressing this disparity. Stories like that of Valarie Traynham highlight the importance of awareness and support. The upcoming ‘Hope for the Future in Black Myeloma Virtual Roundtable’ aims to foster discussions around treatment disparities and advancements in care.
Raising Awareness for Multiple Myeloma: A Call to Action for Black Americans
When it comes to multiple myeloma, understanding is key. This blood cancer, which starts in the bone marrow, impacts how our immune system works and is the second most common blood cancer found in the United States, affecting nearly 179,000 Americans. Sadly, it hits harder among Black Americans, being twice as common and twice as deadly as it is among White patients. Awareness and advocacy are critical, especially as we spotlight this pressing issue.
The Journey of Advocacy
Consider the story of Valarie Traynham, a passionate advocate for those battling multiple myeloma. Diagnosed at the age of 42 in 2015, she initially mistook her condition for melanoma, a much different disease. Over the years, Traynham has become an important resource, connecting over 1,400 Black myeloma patients and caregivers with valuable resources and information on clinical trials. As the Black Myeloma Health Community Outreach Manager for the HealthTree Foundation, she’s been instrumental in raising awareness and sharing knowledge about the signs and symptoms of this challenging illness.
Addressing Disparities and Barriers
Unfortunately, participation in clinical trials—a crucial aspect of finding new treatments—is historically low among Black patients, with only about 8% involved in cancer trials. This lack of participation stems from various systemic barriers, including medical mistrust that has persisted in many communities over time, as well as exclusionary trial designs that inadvertently leave out diverse populations.
Despite progress in treatment options like CAR-T therapy and bispecific therapies, which have significantly improved patient outcomes, the challenge remains: access to these advanced treatments is still a major concern. Patients often face longer waits for treatment after their diagnosis, with an average delay of 5.2 months for Black Americans compared to just 2.7 months for White patients. This significant gap is alarming and highlights the need for change.
Understanding the Risks
The reasons behind the higher incidence of multiple myeloma among Black Americans are complex. Factors like Monoclonal Gammopathy of Undetermined Significance (MGUS) contribute to this increased risk. Furthermore, conditions related to obesity are more prevalent in Black communities, which can further heighten the risk and mortality associated with this disease. Data suggests that as the population of Black patients with multiple myeloma, presently at 20%, is projected to grow to 25% by 2034, the urgency for awareness and education is even greater.
Community Initiatives on the Rise
Groups and organizations are stepping up efforts to educate Black communities about multiple myeloma, aiming to break down the barriers that have hindered awareness in the past. The Johnson & Johnson “That’s My Word” campaign was launched in 2023 to spotlight the importance of understanding multiple myeloma and encourage early detection and treatment.
Community outreach is also essential. Initiatives in local churches and senior centers aim to disseminate knowledge about the symptoms of multiple myeloma, ensuring that even those in underserved areas can access critical information. Advocates emphasize the significant role that care partners—those who support and advocate for patients—play in increasing awareness among the communities they serve.
The Future Looks Hopeful
As the field of cancer treatment continues to evolve, we can look forward to the upcoming 3rd annual “Hope for the Future in Black Myeloma Virtual Roundtable,” scheduled for February 27, 2024. This event will gather experts and advocates to discuss ongoing disparities and new treatment advancements in multiple myeloma care.
Participating in clinical trials and embracing self-advocacy are invaluable steps for patients. The path to better understanding, treatment, and outcomes starts with awareness. By sharing stories, breaking down barriers, and fostering community initiatives, we can make significant strides toward improving the care and quality of life for those facing multiple myeloma. Together, we can create a brighter future for all impacted by this disease.
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Additional Resources
- Essence: Mission to Transform Awareness and Care for Black Patients with Multiple Myeloma
- Google Search: Multiple Myeloma Awareness
- Johnson & Johnson: Multiple Myeloma Health Equity Activists
- Encyclopedia Britannica: Multiple Myeloma
- ABC7NY: Multiple Myeloma Cancer Diagnosis
- Google News: Health Disparities Multiple Myeloma
